Top posts
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Real progress... finally!
I've been keeping a bit quiet, for a while now actually. This is mainly due to a big old slap around the chops from reality, so I've been a bit grumpy. It seems denial creeps in quite nicely, what with trying to keep a smile on your face. In basic terms,...
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Mimic fasting (Fasting Mimicking Diet) – what it’s all about and is it worth it?
Firstly, apologies this has taken so long to get round to. I’ve not been in the best place emotionally – don’t panic tho, I’m OK but sometimes the harsh realities of MS really do steal your sunshine. I have lots to say and this is good stuff though, for...
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Time for plan B
The last couple of blogs I’ve written have been quite serious in nature, not to mention a little infrequent. For that I’m sorry, but to me this feels the most sobering one yet. Monday (tomorrow!) marks five years since my diagnosis and it’s not without...
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Perspective, some big changes
I know I’ve mentioned this before but MS has really altered my perspective on a lot of things. Even on my worst days, I keep trying to find the positives. I don’t think I’ve ever been the complete optimist but I recognise that I’ve needed to try to stay...
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Allow me to introduce you to my MS a.k.a. MuSh #myMuSh
Let me start by saying, writing this particular blog has turned into a bit of a re-branding exercise for me. I'm not too sure my sarcasm was always understood (this condition has never actually been fun) then again, so much both mentally and physically...
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The ugly truth
When I was first diagnosed with MS seven and half years ago, I saw this meme "I may have MS but MS does not have me", I immediately decided that summed it up for me. Everyone from family, friends, work colleagues to my old pole students told me how brave...
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Reality bites… but possibly a little hope?
The real push to finally write this down started after I took place in a clinical trial last year. Going through all the blood tests etc. was ok but every time they did the ECG there was a concern and my blood pressure was a little high. My BP was easy...
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To pee, or not to pee: that is the question
Firstly, apologies to Shakespeare for messing with his words but giggling about these things is truly my best coping mechanism. Secondly, apologies that I’ve taken so long to write this but will probably be blogging like a mad woman in the coming weeks....
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Trial time!
After a truly demoralising two years, I'm sat here in a little discomfort but with a soppy smile on my face... Until very recently, I believed I had PPMS (Primary Progressive Multiple Sclerosis) which is pretty depressing and turned my life upside down....
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Medical stuff update
Medical stuff update You might know that I’ve been a little over-excited (understatement!) about being a participant in a clinical trial. Moreover, it was the only thing I truly believed could help me - just help, not “fix” me. I’m a realist, just putting...
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And backwards again…
~~I’m remaining staunchly optimistic whilst swapping my neurological painkillers for the ones I used to take. So I’ve halved the quantity of Pregabalin over the last few days and today is my first day on zero painkillers for a year or two. I’m all organised...
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Priorities?!
My body is making some pretty poor decisions by my reckoning. Clearly, it cocked up good and proper with an MS diagnosis. After all, by definition an autoimmune disease means one’s own antibodies are attacking the body. I’d be really surprised if anyone...
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Misery loves company?
The end of last year was a shocker for me, I was upset enough with Lemmy passing so suddenly and was then totally choked when I heard my Auntie had cancer. I knew it was bad because she’d been told by her consultant to go home and tell her family. My...
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Nothing is EVER simple
I’ll try to keep this brief as I’m truthfully in a pickle, for so many reasons. Everyone knows it’s been a tough few years for us, so truly I’m trying to just keep my head down. My husband, family and friends keep me afloat and I truly don’t know where...
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All change!
I’m writing this in our new living room and when something catches my eye outside, it’s usually a squirrel – that makes me silly happy and that’s really good right now. Happiness is actually quite hard to achieve when you’re forced to chase it and your...
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Direction, losing direction and distractions…
This blog’s been a long time coming as my head is a mess (quite literally with my lesions & scars, thanks for that MS), I’ll try to keep this brief though, rambling on would be too easy. We move house in less that seven weeks, my little sister is getting...
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Pole-dance - an unexpected life-saver
Hindsight is a wonderful thing but I truly believe pole-dancing, really has saved me! In 2005 I was a complete couch-potato and hated ‘exercise’ as such, I was never sporty. I last rode a horse the year before and I fell off, so I didn’t want that kind...
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Weird and wonderful!
MS symptoms always seem to catch you a bit off guard, you don’t have to be feeling ill or tired. I recently discovered my left foot had started buzzing. The feeling would creep up as soon as my foot relaxed. I was so thankful when it seemed to evaporate...
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Perspective
It’s taken a little time but I think I’m finally getting to grips with the different perspectives associated with this disability, and all the medical stuff to go with it. When I was first told “but you look so well” I was flattered in all honesty…. a...
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Rant
Every now and then, things just get a bit too much to hold your tongue, so here it is (with embarrassing bits)… then hopefully I’ll take a deep breath and enjoy Christmas. When I first heard the phrase “I have MS but MS does not have me” I thought it...
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The good, the bad and the ugly
This my 13th blog and it’s time I get something off my chest, it’s been a niggly irritation ever since the day I was diagnosed. So apologies to anyone that thought it’d be a light-hearted read but I have to get it out the way and then I can move onto...