my MuSh

~~I’m remaining staunchly optimistic whilst swapping my neurological painkillers for the ones I used to take. So I’ve halved the quantity of Pregabalin over the last few days and today is my first day on zero painkillers for a year or two. I’m all organised...

The end of last year was a shocker for me, I was upset enough with Lemmy passing so suddenly and was then totally choked when I heard my Auntie had cancer. I knew it was bad because she’d been told by her consultant to go home and tell her family. My...

Every now and then, things just get a bit too much to hold your tongue, so here it is (with embarrassing bits)… then hopefully I’ll take a deep breath and enjoy Christmas. When I first heard the phrase “I have MS but MS does not have me” I thought it...

I’ll try to keep this brief as I’m truthfully in a pickle, for so many reasons. Everyone knows it’s been a tough few years for us, so truly I’m trying to just keep my head down. My husband, family and friends keep me afloat and I truly don’t know where...

I’m writing this in our new living room and when something catches my eye outside, it’s usually a squirrel – that makes me silly happy and that’s really good right now. Happiness is actually quite hard to achieve when you’re forced to chase it and your...

This blog’s been a long time coming as my head is a mess (quite literally with my lesions & scars, thanks for that MS), I’ll try to keep this brief though, rambling on would be too easy. We move house in less that seven weeks, my little sister is getting...

Hindsight is a wonderful thing but I truly believe pole-dancing, really has saved me! In 2005 I was a complete couch-potato and hated ‘exercise’ as such, I was never sporty. I last rode a horse the year before and I fell off, so I didn’t want that kind...

Medical stuff update You might know that I’ve been a little over-excited (understatement!) about being a participant in a clinical trial. Moreover, it was the only thing I truly believed could help me - just help, not “fix” me. I’m a realist, just putting...

It’s taken a little time but I think I’m finally getting to grips with the different perspectives associated with this disability, and all the medical stuff to go with it. When I was first told “but you look so well” I was flattered in all honesty…. a...

MS symptoms always seem to catch you a bit off guard, you don’t have to be feeling ill or tired. I recently discovered my left foot had started buzzing. The feeling would creep up as soon as my foot relaxed. I was so thankful when it seemed to evaporate...